Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease

Input from diverse stakeholders is critical to the process of designing healthcare interventions. This study applied a novel mixed-methods, stakeholder-engaged approach to co-design a psychosocial intervention for mothers expecting a baby with congenital heart disease (CHD) and their partners to promote family wellbeing. The research team included parents and clinicians from 8 health systems. Participants were 41 diverse parents of children with prenatally diagnosed CHD across the 8 health systems. Qualitative data were collected through online crowdsourcing and quantitative data were collected through electronic surveys to inform intervention co-design. Phases of intervention co-design were: (I) Engage stakeholders in selection of intervention goals/outcomes; (II) Engage stakeholders in selection of intervention elements; (III) Obtain stakeholder input to increase intervention uptake/utility; (IV) Obtain stakeholder input on aspects of intervention design; and (V) Obtain stakeholder input on selection of outcome measures. Parent participants anticipated the resulting intervention, HEARTPrep, would be acceptable, useful, and feasible for parents expecting a baby with CHD. This model of intervention co-design could be used for the development of healthcare interventions across chronic diseases

Give me your answer tonight, please say "I do." [first line of chorus]

Performance Medium: Piano, Voice and Chord

Gotta feelin' for you

Gift of Dr. Mary Jane Esplen.Piano vocal ukulele [instrumentation]All day I talk about you [first line]Crazy 'bout your smile [first line of chorus]F [key]Slow [tempo]Popular song ; motion picture music [form/genre]Women in costume , stars ; Joan Crawford ; Buster Keaton [..] (photgraph) [illustration]Publisher's advertisement on back cover [note

Dream Boat

Gift of Dr. Mary Jane Esplen.Piano vocal [instrumentation]Stars glistening on high, Through the blue [first line]Come with me to my Dream Boat [first line of refrain]G major [key]Allegretto [tempo]Popular song [form/genre]Man playing lute to woman wearing elaborate dress and hat [illustration]Publisher's advertisement on back cover [note

I just roll along havin' my ups and downs

Gift of Dr. Mary Jane Esplen.Piano vocal ukulele [instrumentation]Goodbye goodbye goodbye blues [first line]So I just roll along havin' my ups [first line of chorus]C major [key]Moderato [tempo]Popular song [form/genre]Man, see-saw, butterflies ; May Singh Breen & Peter De Rose (photograph) [illustration]R.S. [engraver]Publisher's advertisement on front inside cover & back cover [note

'Cause I feel low-down

Gift of Dr. Mary Jane Esplen.Piano vocal ukulele banjulele banjo [instrumentation]Friends folks listen to my moan hard luck [first line]F major [key]Moderato [tempo]Popular song [form/genre]Man, plants [illustration]R.S. [engraver]Publisher's advertisement on back cover [note

So I just roll along, havin\u27 my ups, havin\u27 my downs, [first line of chorus]

Performance Medium: Piano and Voice (with lyrics

Dixie dawn

Gift of Dr. Mary Jane Esplen.Piano vocal ukulele [instrumentation]I just had a dream saw a winding stream [first line]Dixie dawn where you wake and yawn [first line of chorus]E flat major [key]Moderato [tempo]Popular song ; foxtrot [form/genre]Trees, water, sun [illustration]Publisher's advertisement on front inside cover & back cover [note